Lupus: Stories about Life and Hope

Lupus

The Book: Lupus: Real Life, Real Patients, Real Talk

The Author: Marisa Zeppieri-Caruana

The Story:  Life was progressing as expected; getting sick was never part of their plan. However, in its own distinct and sudden way, Lupus showed up in the lives of the men and women profiled in this book.

Although their ages, locations and stories are different, they all share one thing in common: they refuse to give up hope, despite Lupus. 

Lupus: Real Life, Real Patients, Real Talk is the first book of its kind in relation to the disease. Journalist, Lupus patient and Lupus Foundation of America Board Member, Marisa Zeppieri-Caruana, set out to find men and women across the nation who will share the hurdles of daily life when battling a debilitating and cruel disease.

What she discovered was a community not broken and hopeless, but one that is optimistic and refuses to give in. These patients have encountered many obstacles – kidney transplants, open-heart surgeries, coma, and dialysis – yet they continue to persevere.

They share their darkest moments and their future dreams. In addition to telling their stories, they discuss tips on how to manage and deal with the disease – emotionally, spiritually and physically. This book provides tangible information and inspiration for every Lupus patient and their loved ones.

It is also an essential tool for those who are newly diagnosed and trying to navigate the choppy waters of chronic illness and daily life.

Featuring Amy Kelly-Yalden, CEO of the Lupus Foundation of America, Southeast Chapter, and Magdalena Cadet, MD, FACR, Director of Rheumatology at New York Presbyterian Healthcare System, this book is not to be missed.

Marissa Zeppieri-Caruana
Marisa Zeppieri-Caruana

About the Author:   Marisa Zeppieri-Caruana is an author, freelance writer and speaker, currently residing in New York and Florida. Marisa has had over 300 articles published covering a wide variety of topics including health, business, religion, women’s issues, and current events. She has been featured and interviewed on the topic of Lupus in Glamour, Eating Well, WebMD, MSNBC, South Florida Today, The Good News, The Chicago Tribune and Yahoo.

Her most recent journalism related work was landing the cover of national magazine, Christianity Today – TCW, March/April 2013 issue with her article entitled, “Reaching a Community.”

Formally educated in Chemistry and Fine Art, Marisa was about to graduate with her RN degree when she was diagnosed with Systemic Lupus. Confined to a bed, she rekindled her love for writing and embarked on a new and fulfilling career. She is currently working on her second Lupus related book and serves as a board member for the Lupus Foundation of America, Southeast Florida Chapter.

Marisa is also the founder of www.LupusSurvivalGuide.com, a website and blog designed for Lupus patients and their families, and www.Wordslingergal.com, a website for those interested in a writing career.

On her “good” Lupus days, Marisa enjoys cooking, spending time with her husband and rescue dog, working out via Xbox, and reading.

Website URL: www.LupusSurvivalGuide.com and www.Wordslingergal.com

Please click the book cover image to read more about Lupus: Real Life, Real Patients, Real Talk.

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  • Caleb Pirtle

    Marisa, you have produced a book that exemplifies endurance, perseverance, and courage while offering hope to so many who suffer from Lupus. Your book is the lifeline that so many need because they know they are not alone.

    • Marisaleigh23

      Hi Caleb! Wow, thank you so much for your kind words. I believe to get through any challenge in life, people need hope…and they also need to know they are not alone in their journey. My mission for this book was to offer those two things to other Lupus patients and their families. Thank you again 😉

      • Caleb Pirtle

        When people know they aren’t alone, Marisa, then they can have hope.

  • Flannery O’Connor was stolen from us by ‘complications of lupus,’ way too young. I hope it is easier to deal with now – ‘easier’ being relative.

    All the chronic illnesses create havoc – and grace.

    • Caleb Pirtle

      We will never know what great works Flannery O’Connor would have given us without the curse if Lupus. It is one of the sad and tragic mysteries of literature.

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